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As many of you know our annual family conference will be in Coventry at the RNIB centre on the 8-9th November. We are really looking forward to welcoming so many of you but if you are unable to attend we have a session called “Ask the Board” This is your opportunity to put a question to our Board of Trustees about the Charity and our plans for the future.

Please email us at  and we will put it to the Board members in that session.

The BDFA was founded by parents and the voices of our members are very important to us. We look forward to hearing from you.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.