Ask The Board

General: 07354 486 586 | Fundraising: 07511 821 181 | Support: 0800 046 9832

As many of you know our annual family conference will be in Coventry at the RNIB centre on the 8-9th November. We are really looking forward to welcoming so many of you but if you are unable to attend we have a session called “Ask the Board” This is your opportunity to put a question to our Board of Trustees about the Charity and our plans for the future.

Please email us at andreawest@bdfa-uk.org.uk and we will put it to the Board members in that session.

The BDFA was founded by parents and the voices of our members are very important to us. We look forward to hearing from you.

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease