General: 07354 486586   |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
OLYMPUS DIGITAL CAMERA

The first meeting of the BATCure group took place at UCL in London on January 27-29. It was a very exciting to finally be starting on the project with over 30 scientists, research students and clinicians attending from Denmark, Germany, Italy, Latvia, Spain, Sweden and the UK.

The BDFA are an integral part of the project to provide the patient voice and Heather Band, BDFA Scientific Officer talked about our part in the work and to introduced the BDFA. Several groups taking part are new to the field of Batten research and were keen to hear about family experiences and how important research is to our community.

Make a donation:

To make a donation please click the button to the right.  This link will then take you to a PayPal page where a donation direct to us can be made.

The amount you enter is your choice and PayPal can collect the funds from a debit or credit card account.

Thank you for your donation.