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Join Royal College of Pediatrics and Child Health for the BPSU’s 30th anniversary Rare Diseases Conference, taking place on 23rd February 2016 at the University of Birmingham.

The conference will bring together paediatricians, trainees and other healthcare workers with an interest in child health, to explore the theme ‘Rare disease in paediatrics – from birth to transition’.

Register here to attend the conference

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease