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Thank you to everyone who has been in contact about Awareness Day on Friday 7 June. It is great to hear about all your plans to mark this important day; thank you for all your support.

We have put together some materials for you to click on, save and use. Thank you to the volunteer who kindly helped with these. There is a social media profile picture, an email banner that is also a social media banner, and a press release template for you to adapt.

Please use the hashtag #BattenDisease in your posts on and about the day.

We are so looking forward to seeing your pictures and hearing your stories from the day. And of course the International Batten Disease Awareness Day is taking place on Sunday 9 June so we have double the opportunity to raise awareness.

Thank you for your support of this important day.

Profile Picture

Social media/email banner

Press release template


Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.


All donations help us to provide the best support we can to families affected by Batten Disease.


Thank you for your support.