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Notice of Annual General Meeting of the Batten Disease Family Association

NOTICE IS HEREBY GIVEN that the Annual General Meeting of the Batten Disease Family Association will be held on

Saturday 25th April 2020

12pm in the Davies Room

The Link Hotel, Ashby Road (A512), Loughborough, Leicestershire LE11 4EX.

The venue is fully accessible and the AGM will be followed by lunch. Parking is available on site at the hotel.

A family fun day will be held from 10.30-3 on the same day with crafts and entertainment.

 

Sign up for tickets here- https://www.eventbrite.co.uk/e/batten-disease-family-associ…

 

For more details on the location, please visit the hotels website- https://www.linkhotelloughborough.co.uk/location/

 

Please select tickets for all attendees for the event.

We look forward to seing you all there

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease