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The LSD collaborative and partners have organised a Webinar about Covid-19 and all families are invited to attend.

Monday 23rd March, 11-12pm

Questions need to be submitted in advance.

We understand it’s an incredibly stressful time for you all. Please do get in touch with us for support. As soon as we have any further, clear information you will be the first to know

Amanda

BDFA Chief Executive

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease