General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Laura, Mum To Anna Who Has CLN3

One day to go till International Batten disease awareness day tomorrow! This year the BDFA will be sharing stories and quotes from those at the heart of our work, the families. Our community has come together again this year to…

Read More
International Batten Disease Awareness Day Is Friday June 9th

SAVE THE DATE International Batten Disease Awareness day is Friday June 9th! Help us to raise awareness, use the #, share posts and help us to turn orange for awareness day this year! More details to follow soon! #battenday2023 #battenawareness…

Read More

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease