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Laura, Mum To Anna Who Has CLN3

One day to go till International Batten disease awareness day tomorrow! This year the BDFA will be sharing stories and quotes from those at the heart of our work, the families. Our community has come together again this year to…

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International Batten Disease Awareness Day Is Friday June 9th

SAVE THE DATE International Batten Disease Awareness day is Friday June 9th! Help us to raise awareness, use the #, share posts and help us to turn orange for awareness day this year! More details to follow soon! #battenday2023 #battenawareness…

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