General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Cancellation Of Lab Open Day (18 June 2015)

Professor Jon Cooper has just been informed by Kings College that his laboratory will be moving between the 15-19th June. As you are aware, this is the same week that we had planned to have the PSDL/BDFA Lab Open Day for…

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Claudia Alejandra Soto – Fundraising

Claudia Alejandra Soto has just completed a Tough Mudder Challenge, ahead of doing the London 10K in July. If you would like to support her, visit her Just Giving Page!

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WOLF Run 2015 – Jenny Shackleton

Jenny Shackleton ran the WOLF Run to raise money for the BDFA. Although really cold, she did an amazing job and completed the course! Have a watch of the video! https://www.youtube.com/watch?v=NCA-xqUoBPw&feature=youtube_gdata&app=desktop

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BDFA Spring Newsletter & Bulletin

Our Newsletter and Bulletin are now available for download below. Please have a read! Spring Newsletter 2015 Spring Bulletin 2015

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Dreams Come True Charity

Dreams Come True Charity are a UK national charity that fulfil dreams and wishes for children and young people aged between 2 and 21 years old. They can help with meeting an idol, visiting a special place in the UK…

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Contact A Family – Petition To Stop DLA Being Taken Away

Disability Living Allowance (DLA) is the main benefit to help meet the extra costs of having a disabled child. Yet when your child is in hospital for a long time DLA is taken away. Families tell us the extra costs…

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Cerebra Innovation Centre

Cerebra Innovation Centre may be able to help find equipment to suit your child or young persons needs. Cerebra Innovation Centre was originally set up because although some equipment is available to buy, it often doesn't look very nice or…

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Pledge For Patients

Ahead of the forthcoming election Rare Disease UK, Genetic Alliance UK and SWAN UK have joined forces to launch their first ever joint campaign. They have created a pledge card to ensure that whoever forms the next Government will be…

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Challenge Yourself For BDFA

We have places in a whole series of events over the next 9 months ranging from road runs, muddy runs, cycling and long walks! A lot of the events listed below have distance options; just contact us to find out…

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