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BDFA Financial And Organisation Update May 2020

BDFA Financial and Organisation Update May 2020   We held a zoom meeting earlier this month to discuss the BDFA’s accounts (year-end August 2019) and we were joined by 11 parents as well as professionals working in the Batten arena.…

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Reminder Of Virtual Family Meeting Tomorrow- Friday 1st May, And Welcome Richard

A Quick Reminder, it is not too late to sign up!   Just a reminder that we have our ‘pre-AGM’ family meeting tomorrow at 2pm on Zoom about the BDFA’s accounts (year end 2019) and our current position and future…

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***IMPORTANT BDFA MEETING NEWS** Virtual ‘family’ Meeting To Share Our Future Plans And Financial Position

  Virtual ‘family’ meeting to share our future plans and financial position  Friday 1st May from 2-3.30pm The BDFA is pleased to invite you to a virtual ‘family’ meeting on Zoom to discuss our latest accounts (year end August 2019)…

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Welcome To Becky Bower

A big welcome to Becky Bower, who will be covering Laura while she is on maternity leave from May A message from Becky,   I just wanted to take the time to quickly introduce myself to you all. As you…

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** BDFA NEWS ** A Message From Laura Lee Our Amazing Clinical Nurse Specialist

** BDFA NEWS ** A message from Laura Lee our amazing Clinical Nurse Specialist Hello, I wanted to share with you all the exciting news that I am expecting a baby boy in June and will be going on Maternity…

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*** UPDATE *** BDFA MEDICAL WEBINAR- CHANGE OF TIME

*** UPDATE *** BDFA MEDICAL WEBINAR- CHANGE OF TIME Wednesday 22nd April- NEW TIME 4PM Dear All,   Just to confirm our BDFA medical webinar tomorrow. Please note the change in time of 4pm.   Unfortunately Professor Gissen has had…

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BDFA MEDICAL WEBINAR,  Wednesday 22nd April- 11am

BDFA MEDICAL WEBINAR Wednesday 22nd April- 11am We are holding our first BDFA Medical Webinar next Wednesday at 11am. We welcome our guests for this event Professor Paul Gissen and clinical nurse specialists Laura Lee and Becky Bower. They will be discussing…

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One Of Our Parents, Amanda Harrison, Writes About Her Experience Of Lockdown During Coronavirus

One of our parents, Amanda Harrison, writes about her experience of lockdown during Coronavirus. Her feelings of isolation will resonate with many. Likewise, issues accessing shopping slots and the loss of key support such as the family's local hospice. Thank…

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Cancellation Of AGM On 25th April 2020

Cancellation of AGM on 25th April 2020 Dear all, It is with great regret that we, the BDFA, have had to make the disappointing decision to cancel our AGM in April. We hope that you understand, in line with organisations…

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The LSD Collaborative And Partners Webinar About Covid-19

The LSD collaborative and partners have organised a Webinar about Covid-19 and all families are invited to attend. Monday 23rd March, 11-12pm Questions need to be submitted in advance. We understand it's an incredibly stressful time for you all. Please…

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