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First Peer Befriending Weekend Retreat

The BDFA held its first Peer befriending retreat this past weekend in Surrey, gathering together some of our wonderful peer befriending volunteers for some training and connection time as a team. We have also just started our second Peer Befriending…

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Join Our Friendly Dads Chat Session On Thursday 2nd February At 8pm On Zoom- Date Has Changed!

🚹 Join our friendly Dads chat session on Thursday 2nd February at 8pm on zoom. 🚹 The Dads Chat group is a chance to meet with other dads of children with Batten disease. It’s led by one of our trained…

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Would You Like To Become A BDFA Peer Befriender? Could You Give Support To Another Family Living With Batten Disease?

Why not kick off 2023 with a new challenge to help support other Batten families! The course starts on Tuesday 24th January 2023, where you will have expert training and become a vital part of our wonderful Peer befriending volunteer…

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JANUARY 2023 PEER BEFRIENDING COURSE APPLICATIONS OPEN!

Would YOU like to be a BDFA PEER BEFRIENDER? The BDFA were proud to launch a new Peer Befriending service in 2022 to help support families in a way that only other parents of children with Batten Disease will be…

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BDFA Family Conference In Stratford Upon Avon, Thank You!

Every emotion resonated at our family conference in Stratford Upon Avon last weekend, the first in five years. The joy of reunion, the power of connection, the comfort of camaraderie… it was such a special weekend with tears and laughter…

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WOULD YOU LIKE A PEER BEFRIENDER TO TALK TO, SUPPORT YOU AND TO HELP IMPROVE YOUR EMOTIONAL WELLBEING?

The BDFA is proud to offer an exciting new service for families. We have just completed our first Peer Befriending training course and have a team of peer befriender volunteers ready to support parents in the Battens community… ‘What is…

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Ever Wondered How Peer Befriending Helps Parents?

One parent who previously benefitted from having a Peer Befriender said…  “My Peer befriender has been an absolute lifeline. Since the diagnosis I have felt very cut off and not wanted to socialise or see anybody. It’s so helpful to…

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Update- PEER BEFRIENDING TRAINING NOW ON TUESDAYS!

We have adapted the day of Peer Befriending training to Tuesdays to suit parent availability. We have a few spaces left and would love to hear from you if you would like to become a Peer Befriender for the BDFA.…

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Would YOU Like To Be A PEER BEFRIENDER?

The BDFA are proud to launch a new Peer Befriending service to help support families in a way that only other parents of children with Batten Disease will be able to do. We’re so excited to be now seeking our…

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