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2023 01 25 09.55.25

The BDFA held its first Peer befriending retreat this past weekend in Surrey, gathering together some of our wonderful peer befriending volunteers for some training and connection time as a team. 🧡

We have also just started our second Peer Befriending course and are looking forward to welcoming even more Peer Befrienders to the team and being able to expand our service.

“Our first peer Befriending weekend away was very special as it was the first time some of us had been together in person.Having the opportunity to talk, connect & learn from each other was really wonderful. I am so proud to be part of such a lovely team with some amazing parents. I feel this weekend has strengthened our bond as a team & we all share a love of being part of a service which is supporting the Batten community.

Thank you Mimi for organising such a fabulous weekend & for showing us how much our team are valued. We are already looking forward to the next one!!”

Gail, BDFA Peer Befriender

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease