Invitation to Dr Claire Russell’s Lab at Royal Veterinary College, London Friday 25th September 2015 11am-4pm Royal College Street London NW1 0TU
Recreating NCL (Batten disease) in animals allows us to understand what processes go wrong in the disease and enables the testing of new therapeutic approaches. In particular, zebrafish have unique features which make them easy to study and manipulate to help us to better understand these diseases.
The BDFA is delighted to announce that the BATCure Research Consortium headed up by Dr Sara Mole at University College London has been awarded an EU Horizon2020 Innovation Grant of 6 million Euros to investigate potential therapies for CLN3, CLN6…
The Cycle to the Circle team have made it! You can read about the amazing journey and why they have done it here - Words form the team on completion - Worth it for 'the cause'. A big thank you to BDFA,…
The BDFA welcomes the recent announcement by PlasmaTech Biopharmaceuticals, Inc. Professor Kielian and the UNeMed Corporation (the technology transfer and commercialization office (TTO) for the University of Nebraska Medical Center) are to be congratulated for their hard work and vision…
Professor Jon Cooper has just been informed by Kings College that his laboratory will be moving between the 15-19th June. As you are aware, this is the same week that we had planned to have the PSDL/BDFA Lab Open Day for…
Our Newsletter and Bulletin are now available for download below. Please have a read! Spring Newsletter 2015 Spring Bulletin 2015
Sparks, on behalf of the Batten Disease Family Association is calling for applications researching the causes and treatments for the following forms of Neuronal Ceroid Lipofuscinoses, NCL (Batten disease) CLN1, CLN5, CLN6, CLN7 and CLN8. Read More Here If you would…
Genetic alliance UK would like to invite you to join us for our week of events exploring how genome sequencing could impact your future. For details of the events and how to book tickets, please visit their website.
Good news for the next step in European Research funding for Batten disease. The proposal submitted by Dr Sara Mole, UCL London, has successfully passed the first round in the European Commission funded project Horizon 2020 Societal Challenge “Health, Demographic…
BioMarin (BMRN) Says early data from Phase 1/2 BMN190 Study Shows Stabilisation of Disease. We are all very encouraged by the work of our partners in the scientific and pharmaceutical communities and hugely grateful to the courage of those parents and…