General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Poppy Single Cover Final

The BDFA will once again have its own official Batten Disease Awareness Day song this year and it has been written and performed by Poppy Brownnutt, from Shipley West Yorkshire! Poppy, who is 15, wrote the song about her precious memories of her two cousins, Ellie Mae and Caleb, who both passed away from CLN2 Batten disease aged 6 and 9. It is a wonderful song and a beautiful tribute to the children. We know that it will really help to raise awareness.

The single has been produced by our amazing friend and supporter David McGovern, along with his good friend Paul Fairbairn. David will be releasing the single on his ‘Beyond’ record label in time for Awareness Day. We are so grateful to David for his tremendous support of the BDFA and the Batten community.

We will be telling you more about Poppy and her song in the coming days and we really hope that everyone will get behind the single and help to spread the word!

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease