We are very excited to share the news that our Awareness day single by ‘Poppy’ – “When You Were With Me” will be available on LIMITED EDITION CD SINGLE on 17th June, as well as digitally on 6th June 2022.
You can pre-order your copy today!
The singe is the Official Batten Disease Awareness Day song this year and it has been written and performed by Poppy Brownnutt, from Shipley West Yorkshire! Poppy, who is 15, wrote the song about her precious memories of her two cousins, Ellie Mae and Caleb, who both passed away from CLN2 Batten disease aged 6 and 9. It is a wonderful song and a beautiful tribute to the children. We know that it will really help to raise awareness.
The single has been produced by David McGovern, along with his good friend Paul Fairbairn. All profits from the release of this amazing song will go to the Batten Disease Family Association to help them continue to support the Batten Community and fund research to find a cure for this awful disease.
You can pre order a copy now by clicking the link below
