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Copy Of Awareness Day 2022 Sessions

The BDFA are running two sessions for families this year on awareness day.

🧡 At 4pm we are holding a special (and probably very orange!) edition of our virtual family cuppa get together on Zoom.Join us and tell us what you are up to for awareness day!

🧡 Then at 6pm the BDFA team invite our bereaved families to join us in a remembrance session or loved one we have lost to Batten. This session is on zoom. This was a really lovely and heart warming get together last year for awareness day, and we are hoping to see you there.

If you would like to join either of these sessions, please email Lisa at for the links.


Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.