ITS AWARENESS DAY THIS WEEK!!!!

General: 07354 486 586 | Fundraising: 07511 821 181 | Support: 0800 046 9832

The BDFA are running two sessions for families this year on awareness day.

At 4pm we are holding a special (and probably very orange!) edition of our virtual family cuppa get together on Zoom.Join us and tell us what you are up to for awareness day!

Then at 6pm the BDFA team invite our bereaved families to join us in a remembrance session or loved one we have lost to Batten. This session is on zoom. This was a really lovely and heart warming get together last year for awareness day, and we are hoping to see you there.

If you would like to join either of these sessions, please email Lisa at admin@bdfa-uk.org.uk for the links.

Thanks!!

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With your support we can help support families living with the devastating diagnosis of Batten disease

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Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease