The BDFA are running two sessions for families this year on awareness day.
At 4pm we are holding a special (and probably very orange!) edition of our virtual family cuppa get together on Zoom.Join us and tell us what you are up to for awareness day!
Then at 6pm the BDFA team invite our bereaved families to join us in a remembrance session or loved one we have lost to Batten. This session is on zoom. This was a really lovely and heart warming get together last year for awareness day, and we are hoping to see you there.
If you would like to join either of these sessions, please email Lisa at firstname.lastname@example.org for the links.