General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Screen Shot 2015 01 09 At 12.34.50

The BDFA are very proud to be part of this initiative to raise the profile of rare disease with the medical student and education community. Please share with anyone you think may be interested.

This meeting aims to encourage medical students and trainees to develop understanding and awareness of rare conditions to reduce time to diagnoses

At the end of the meeting participants will to inform the medical student and trainee about rare diseases that they would not necessarily become familiar with a medical school. To understand the genetic basis of rare diseases and appreciate how studying these disorders can inform about common, complex diseases – eg osteoporosis. To understand the needs of individuals affected by rare diseases. To be familiar with the European commitment to help people with rare diseases and develop new bespoke therapies

More information on their website here.

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease