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We are very privileged to work with the dedicated and outstanding team from Seeability at Heather House who support young people living with a CLN3 diagnosis. Delighted that their work has been recognised:

STAFF at the Tadley branch of charity SeeAbility have been honoured for their hard work over the past year with a plethora of awards.

The Excellence Awards recognise outstanding performance from staff, and nominations are made by those who are cared for by the charity and their families as well as other members of staff.

Read more here

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease