Well the Christmas charity single made it all the way to the no 1 position in the official UK physical singles charts!! Huge congratulations and thanks to our friend and supporter David McGovern for this amazing achievement. David has worked…
Welcome to the BDFA newsletter December edition. The team has been working really hard to get the newsletters going again after a long break. We hope you enjoy the update. Wishing you all a Merry Christmas and a very happy…
It's the first year of these very special BDFA awards, celebrating best practice across the UK among people supporting and working with our children, young people and adults with Batten Disease.All our winners and those specially commended have been nominated…
Help us design our charity Christmas card for 2021! We are looking for some amazing Christmas designs from our batten community to feature on our Christmas card Be as creative as you like, paint, draw, do it as a team,…