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The UK Batten Disease Awareness Day will take place on Friday 7 June 2019. This year it is crucial that it is as impactful as possible. We need families, friends and supporters to tell everyone about Batten disease, raise awareness…

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For one week only during the Big Give Christmas Challenge, (Tuesday 28th November- Tuesday 5th December) our donate button will redirect you to our campaign page to make your donation which will be DOUBLED!

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