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We are a proud member of the Disabled Children’s Partnership – a growing coalition of more than 60 organisations – campaigning for improved health and social care for disabled children, young people and their families in England.

We know that 43% of the British public don’t know anyone who is disabled and that 97% of parents with a disabled child do not believe the public understands the challenges they face every day.

Our campaign, the Secret Life Of Us – developed in close partnership with parents – looks to change this.

It reveals the parts of their lives that most people simply do not see – bringing to life the realities of the challenges disabled children, young people and their families face when living a life many of us take for granted.

By doing this, we hope to open the eyes of the public to the difficulties faced by families on a day-to-day basis, removing the barriers to people being able to relate to the lives of disabled children.

Through this, we can create greater understanding, affinity and empathy for affected families.

Because without awareness and understanding, we cannot achieve real change.

But, with increased awareness and public support we can make a real difference.

Pledge your support for our campaign here.

And like our Facebook page and follow us on Twitter!

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

You can also TEXT DONATE 

Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.