Thursday 9th June 2022 6pm -7pm This session is open to all members of the wider family who have been touched by the loss of a loved one to Batten disease. Please email admin@bdfa-uk.org.uk for the link to join. If…
Notice is hereby given that the 2021 Annual General Meeting of the Batten Disease Family Association to be held via Zoom video-conferencing on Saturday 25th June 2022, 2pm. AGENDA Introduction and Welcome 2. AGM Minutes year end 2020 – To…
The BDFA are running two sessions for families this year on awareness day. At 4pm we are holding a special (and probably very orange!) edition of our virtual family cuppa get together on Zoom.Join us and tell us what you…
