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Join Us On Awareness Day For Batten Remembrance Cuppa With Bereaved Families

Thursday 9th June 2022 6pm -7pm This session is open to all members of the wider family who have been touched by the loss of a loved one to Batten disease. Please email for the link to join. If…

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Notice Of Annual General Meeting Of The Batten Disease Family Association

Notice is hereby given that the 2021 Annual General Meeting of the Batten Disease Family Association to be held via Zoom video-conferencing on Saturday 25th June 2022, 2pm. AGENDA Introduction and Welcome 2. AGM Minutes year end 2020 – To…

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The BDFA are running two sessions for families this year on awareness day. At 4pm we are holding a special (and probably very orange!) edition of our virtual family cuppa get together on Zoom.Join us and tell us what you…

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