Our Newsletter and Bulletin are now available for download below. Please have a read! Spring Newsletter 2015 Spring Bulletin 2015
Read the Annual Report 2014 here The Batten Disease Family Association is the only UK Charity committed to supporting families, raising awareness and funding research into the devastating set of neurodegenerative diseases commonly known as Batten disease. The BDFA was…
After the success that was our Family Weekend, we have the video highlights ready for you to see! Please watch and share! https://vimeo.com/112004121
After the amazing Family Conference weekend, we would love it if you could send us your feedback. Below is a very brief feedback form to fill in. You can download it, complete it and post it back to us. Lucy…
The BDFA Family Conference is over for another year. Lots of families, children and professionals attended. Once we have had chance to re group, we shall have a full review of the weekend. You can see more pictures on our Facebook…
Day 1 of our Family Conference has finished. Seeing the families getting the chance to talk to each other and also to the professionals is exactly the point of the weekend. We have had research updates, family groups, activities for…
As many of you know our annual family conference will be in Coventry at the RNIB centre on the 8-9th November. We are really looking forward to welcoming so many of you but if you are unable to attend we…
We are very pleased to invite you to attend the 2014 BDFA Family Networking Weekend and AGM which will be held on: Saturday 8th and Sunday 9th November 2014 from 10.30am – 4.00pm at RNIB Pears Centre, Wheelwright Lane, Ash Green,…