General: 07354 486586   |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
Exciting News! BDFA Will Once Again Have Its Own Official Batten Disease Awareness Day Song 2022

The BDFA will once again have its own official Batten Disease Awareness Day song this year and it has been written and performed by Poppy Brownnutt, from Shipley West Yorkshire! Poppy, who is 15, wrote the song about her precious…

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BDFA Kids T-shirt’s In The Shop Now!

Check out the new BDFA kid’s t-shirts. Available in our BDFA colour options of blue and orange. T-shirts have the option to be personalised (extra charge for personalisation) Grab one in time for Batten disease Awareness day on June 9th…

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BDFA Christmas Charity Single Made It All The Way To The No 1!

Well the Christmas charity single made it all the way to the no 1 position in the official UK physical singles charts!! Huge congratulations and thanks to our friend and supporter David McGovern for this amazing achievement. David has worked…

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BDFA Christmas Charity Single 2021, Pre Order Now!

We are so excited!! The Christmas Charity single in aid of the BDFA is released on Friday 3rd December and you can order a copy on limited edition CD now! See David's link below...We can't wait! Stay The Same (Featuring…

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BDFA Christmas Card Competition

Help us design our charity Christmas card for 2021! We are looking for some amazing Christmas designs from our batten community to feature on our Christmas card Be as creative as you like, paint, draw, do it as a team,…

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Katie’s Fundraising Story

Katie’s Fundraising Story My family has recently found out devastating news that my amazing nephew has a terminal disease, CLN6 Battens disease, which will progressively take his vision, motor and neurological functions and we have until possibly early teens with…

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Looking For A New Fundrasing Role?

Come and join our team as our new Head of Fundraising.The BDFA is looking to diversify its income streams, secure its future and grow the support it can offer to families.We are looking for a strong fundraiser who has a…

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